RT Journal Article
SR Electronic
T1 Biobank research, informed consent and society. Towards a new alliance?
JF Journal of Epidemiology and Community Health
JO J Epidemiol Community Health
FD BMJ Publishing Group Ltd
SP 1125
OP 1128
DO 10.1136/jech-2014-205215
VO 69
IS 11
A1 Flavio D'Abramo
YR 2015
UL http://jech.bmj.com/content/69/11/1125.abstract
AB With the rise of -omics disciplines and biobank research, personal data and biosamples crossing national borders pose new ethical questions. In this article, informed consent, as originally conceived, is shown as not being sufficient to address aims of research and interests of patients any more. Therefore the author has, after having scrutinised issues in biobanking, sketched a model of dynamic consent and a manner of scrutinising ethical issues through empirical data.