End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference?

J Epidemiol Community Health. 2007 Dec;61(12):1062-8. doi: 10.1136/jech.2006.056341.

Abstract

Objective: To examine differences in end-of-life decision-making in patients dying at home, in a hospital or in a care home.

Design: A death certificate study: certifying physicians from representative samples of death certificates, taken between June 2001 and February 2002, were sent questionnaires on the end-of-life decision-making preceding the patient's death.

Setting: Four European countries: Belgium (Flanders), Denmark, Sweden, and Switzerland (German-speaking part).

Main outcome measures: The incidence of and communication in different end-of-life decisions: physician-assisted death, alleviation of pain/symptoms with a possible life-shortening effect, and non-treatment decisions.

Results: Response rates ranged from 59% in Belgium to 69% in Switzerland. The total number of deaths studied was 12 492. Among all non-sudden deaths the incidence of several end-of-life decisions varied by place of death. Physician-assisted death occurred relatively more often at home (0.3-5.1%); non-treatment decisions generally occurred more often in hospitals (22.4-41.3%), although they were also frequently taken in care homes in Belgium (26.0%) and Switzerland (43.1%). Continuous deep sedation, in particular without the administration of food and fluids, was more likely to occur in hospitals. At home, end-of-life decisions were usually more often discussed with patients. The incidence of discussion with other caregivers was generally relatively low at home compared with in hospitals or care homes.

Conclusion: The results suggest the possibility that end-of-life decision-making is related to the care setting where people die. The study results seem to call for the development of good end-of-life care options and end-of-life communication guidelines in all settings.

Publication types

  • Comparative Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Caregivers
  • Decision Making*
  • Europe
  • Euthanasia
  • Female
  • Home Care Services
  • Homes for the Aged
  • Hospitalization
  • Humans
  • Logistic Models
  • Male
  • Middle Aged
  • Pain Management
  • Patient Participation
  • Terminal Care / methods*
  • Terminal Care / standards