Article
Performance of health-related quality-of-life instruments in a spinal cord injured populationā˜†,ā˜†ā˜†,ā˜…

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Abstract

Objective: General health-related quality-of-life (HRQoL) surveys have not been well tested in populations with spinal cord injury (SCI). This study evaluated the performance of 5 such instruments.

Design: A cross-sectional survey with instruments administered in random order during computer-assisted interviews.

Setting: A midwestern US veteran SCI program.

Subjects: One hundred eighty-three veterans with SCI ranging in age from 21 to 81yrs (mean = 50.5).

Measures: The Behavioral Risk Factor Surveillance System (BRFSS) HRQoL modules, the Quality of Well-Being scale (QWB), the Medical Outcomes Study Short-Form 36 and Short-Form 12 (SF-36, SF-12), and instrumental activities of daily living (IADL).

Results: Construct validity was supported by scores from the QWB, IADL, and physical health measures of the BRFSS and SF-36 showing greater impairment for quadriplegia than paraplegia. Similar constructs on the SF-36 and BRFSS were more strongly correlated than between the IADL and QWB; eg, correlation between the SF-36 Vitality scale and the BRFSS ā€œDays full of energyā€ question was r = .789 (p < .01), whereas correlation between the IADL and QWB was r = āˆ’.454 (p < .01). Longer surveys (SF-36, QWB) were rated lower in subject acceptability.

Conclusions: These instruments have potential for research use among patients with SCI. More studies are needed to explore the best use of instruments with apparently different domains.

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    ā˜†

    Supported by the Centers for Disease Control and Prevention through Saint Louis University Prevention Research Center grant U48/CCU710807 (Special Interest Project SIPS-96).

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    Presented in part at the 21st annual meeting of the Society for Epidemiologic Research, June 24ā€“26, 1998, Chicago, and the Tenth National Conference on Disability and Health, October 14ā€“16, 1998, Dallas, TX.

    ā˜…

    No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the authors or upon any organization with which the authors are associated.

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