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Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC)
  1. Monica Beccaro1,
  2. Massimo Costantini1,
  3. Paolo Giorgi Rossi2,
  4. Guido Miccinesi3,
  5. Maria Grimaldi4,
  6. Paolo Bruzzi1,
  7. on behalf of the ‘ISDOC Study Group’
  1. 1Unit of Clinical Epidemiology, National Cancer Institute, Genoa, Italy
  2. 2ASP Lazio, Rome, Italy
  3. 3Clinical Epidemiology, Centre for the Study and Prevention of Cancer, Florence, Italy
  4. 4Department of Epidemiology, National Cancer Institute, G Pascale Foundation, Naples, Italy
  1. Correspondence to:
 Dr M Costantini
 Unit of Clinical Epidemiology, National Cancer Institute, Largo Rosanna Benzi, 10, 16132, Genoa, Italy; massimo.costantini{at}istge.it

Abstract

Objective: To describe actual and preferred place of death of Italian cancer patients and to analyse the preferences met regarding the place of death.

Design: Mortality follow back survey of 2000 cancer deaths, identified with a two stage probability sample representative of the whole country. Information on patients’ experience was gathered from the non-professional caregiver with an interview. A section of the interview covered information on the actual and preferred place of death of the patients.

Setting: 30 Italian local health districts randomly selected after stratification in four geographical areas.

Participants: 1900 of 2000 (95.0%) caregivers of cancer deaths identified.

Main outcome measures: Prevalence of actual and preferred places of death.

Results: Valid interviews were obtained for 66.9% (n = 1271) of the caregivers. Place of death was home for 57.9% of Italian cancer patients, hospital for 34.6%, hospice for 0.7%, nursing home for 6.5%, and ambulance for 0.4%. Wide and significant differences within Italy were seen (home deaths ranged between 94.0% in the south and 28.2% in the north east). Home was the preferred place of death for 93.5% of patients that expressed a preference, with minimal differences within the country (between 89.5% and 99.0%). Overall 67.1% of the sample died in the place where they preferred to die.

Conclusions: Policymakers should encourage health services to focus on ways of meeting individual preferences on place of death. As home was the preferred place of death for most cancer patients, effective programmes to enable the patients to remain at home should be implemented.

  • place of death
  • neoplasms
  • terminal care
  • patient preferences

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Footnotes

  • Funding: this study was supported by a grant of the Italian Ministry of Health (Progetti di Ricerca Finalizzata 2001–2003).

  • Competing interests: none.

  • The results of this research were presented at the 9th congress of the European Association for Palliative Care (EAPC), Aachen (Germany) 8–10 April 2005, and at the 12th congress of the Italian Society for Palliative Care (SICP), Florence 19–22 April 2005.

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